Author details

Full Name

Joan Scott

Affiliation

ORCID

Career Start Year

2005

Papers

H Index

Expertise

CM4AI Collaborator

PMID	Paper Title	Journal Title	Published Year
35642870	Introducing the Blueprint for Change: A National Framework for a System of Services for Children and Youth with Special Health Care Needs.	Pediatrics	2022
35642876	A Blueprint for Change: Guiding Principles for a System of Services for Children and Youth With Special Health Care Needs and Their Families.	Pediatrics	2022
35642873	Progress, Persistence, and Hope: Building a System of Services for CYSHCN and Their Families.	Pediatrics	2022
22402755	Public preferences regarding the return of individual genetic research results: findings from a qualitative focus group study.	Genet Med	2012
29768770	Preparing health professionals for individualized medicine.	Per Med	2012
22538255	Preferences for opt-in and opt-out enrollment and consent models in biobank research: a national survey of Veterans Administration patients.	Genet Med	2012
22278220	Risky business: risk perception and the use of medical services among customers of DTC personal genetic testing.	J Genet Couns	2012
22411865	New models for large prospective studies: is there a better way?	Am J Epidemiol	2012
21828326	Noninvasive fetal sex determination using cell-free fetal DNA: a systematic review and meta-analysis.	JAMA	2011
19556748	Developing the blueprint for a genetic testing registry.	Public Health Genomics	2010
19346960	Veterans' attitudes regarding a database for genomic research.	Genet Med	2009
19878915	Public opinion about the importance of privacy in biobank research.	Am J Hum Genet	2009
19833988	Public perspectives on informed consent for biobanking.	Am J Public Health	2009
18189289	Ethical implications of including children in a large biobank for genetic-epidemiologic research: a qualitative study of public opinion.	Am J Med Genet C Semin Med Genet	2008
19011407	Subjects matter: a survey of public opinions about a large genetic cohort study.	Genet Med	2008
19061108	Public expectations for return of results from large-cohort genetic research.	Am J Bioeth	2008
18700896	Carrier screening for cystic fibrosis in US genetic testing laboratories: a survey of laboratory directors.	Clin Genet	2008
16964214	Oversight of US genetic testing laboratories.	Nat Biotechnol	2006
15950627	Opinions about new reproductive genetic technologies: hopes and fears for our genetic future.	Fertil Steril	2005
16274615	PGD patients' and providers' attitudes to the use and regulation of preimplantation genetic diagnosis.	Reprod Biomed Online	2005

1 - 20 of 20

Joel E Pacyna

Biomedical Ethics Program, Mayo Clinic

Career Start Year 2014

Number of shared co-authors 0

Stacey Pereira

Baylor College of Medicine.

Career Start Year 2013

Number of shared co-authors 0

Diane M Korngiebel

Google

Career Start Year 2012

Number of shared co-authors 1

Leila Jamal

Center for Cancer Research, National Cancer Institute

Career Start Year 2012

Number of shared co-authors 1

Sarah K Savage

Invitae Corporation

Career Start Year 2012

Number of shared co-authors 1

Jill O Robinson

Baylor College of Medicine.

Career Start Year 2011

Number of shared co-authors 3

Maureen E Smith

Center for Genetic Medicine, Feinberg School of Medicine, Northwestern University

Career Start Year 2010

Number of shared co-authors 3

Kurt D Christensen

Harvard Medical School, Harvard Pilgrim Health Care Institute

Career Start Year 2007

Number of shared co-authors 2

Aaron J Goldenberg

Case Western Reserve University

Career Start Year 2005

Number of shared co-authors 0

Joon-Ho Yu

University of Washington School of Medicine

Career Start Year 2005

Number of shared co-authors 3

Flavia M Facio

Invitae Corporation

Career Start Year 2004

Number of shared co-authors 2

Amy L McGuire

Baylor College of Medicine.

Career Start Year 2002

Number of shared co-authors 9

Kyle B Brothers

Norton Children's Research Institute Affiliated with the University of Louisville

Career Start Year 2002

Number of shared co-authors 6

Saskia C Sanderson

University College London

Career Start Year 2001

Number of shared co-authors 3

Holly K Tabor

Stanford Center for Biomedical Ethics (SCBE), Stanford University

Career Start Year 2000

Number of shared co-authors 4

Susanne B Haga

Duke University School of Medicine

Career Start Year 1999

Number of shared co-authors 2

Richard R Sharp

Biomedical Ethics, Mayo Clinic and Foundation

Career Start Year 1999

Number of shared co-authors 5

Susan Brown Trinidad

University of Washington

Career Start Year 1998

Number of shared co-authors 2

Cinnamon Bloss

University of California

Career Start Year 1998

Number of shared co-authors 0

Pamela Sankar

University of Pennsylvania, Department of Medical Ethics and Health Policy

Career Start Year 1997

Number of shared co-authors 3

Sharon Aufox

Northwestern University, Center for Genetic Medicine

Career Start Year 1996

Number of shared co-authors 3

Kelly E Ormond

Stanford University School of Medicine

Career Start Year 1996

Number of shared co-authors 1

Stephanie M Fullerton

University of Washington School of Medicine

Career Start Year 1994

Number of shared co-authors 4

Melanie F Myers

Cincinnati Children's Hospital Medical Center

Career Start Year 1994

Number of shared co-authors 4

Amy A Lemke

Norton Children's Research Institute, University of Louisville School of Medicine

Career Start Year 1992

Number of shared co-authors 1

Wendy R Uhlmann

University of Michigan School of Medicine ann arbor

Career Start Year 1989

Number of shared co-authors 1

Barbara B Biesecker

and Translational Research Center

Career Start Year 1987

Number of shared co-authors 6

Mildred K Cho

Center for Biomedical Ethics, Stanford University School of Medicine

Career Start Year 1985

Number of shared co-authors 2

E Clayton

Harvard Medical School, Vanderbilt University, Yale University Yale Law School

Career Start Year 1985

Number of shared co-authors 10

Wylie Burke

The Heart Institute, Cincinnati Children's Hospital Medical Center

Career Start Year 1975

Number of shared co-authors 8

row(s) 1 - 30 of 30

Kathy Hudson

From the National Institutes of Health

Co-authored papers 12

Juli Bollinger

Berman Institute of Bioethics, Johns Hopkins University

Co-authored papers 11

David Kaufman

National Human Genome Research Institute

Co-authored papers 11

Lisa LeRoy

Abt Associates Inc.

Co-authored papers 4

Gail Geller

Berman Institute of Bioethics, Johns Hopkins University

Co-authored papers 4

Gail H Javitt

D.C. and Berman Institute of Bioethics, Johns Hopkins University

Co-authored papers 3

Rachel Dvoskin

Berman Institute of Bioethics, Johns Hopkins University

Co-authored papers 3

Andrea L Kalfoglou

University of Maryland

Co-authored papers 2

Teresa Doksum

Abt Associates Inc.

Co-authored papers 1

Daniel R Masys

University of Washington School of Medicine.

Co-authored papers 1

Christine D Berg

Co-authored papers 1

Barbara A Bernhardt

Thomas Jefferson University

Co-authored papers 1

Rory Collins

Co-authored papers 1

Nancy L Pedersen

Co-authored papers 1

Francis S Collins

University of Michigan ann arbor

Co-authored papers 1

David J Doukas

a Tulane University School of Medicine, New Orleans VA Medical Center

Co-authored papers 1

Nancy Reame

From the Columbia University School of Nursing

Co-authored papers 1

John Michael Gaziano

VA Boston Healthcare System

Co-authored papers 1

Catherine A McCarty

University of Minnesota Medical School, 1035 University Drive duluth

Co-authored papers 1

Robert N Hoover

National Cancer Institute

Co-authored papers 1

Debra J H Mathews

Carlsberg Laboratory, Case Western Reserve University, Johns Hopkins Medicine, Johns Hopkins School of Medicine, Johns Hopkins School of Public Health, Johns Hopkins University, National Academy of Sciences, Pennsylvania State University, Presidential Commission for the Study of Bioethical Issues

Co-authored papers 1

John H Evans

Institute for Practical Ethics, University of California

Co-authored papers 1

Catherine Schaefer

Co-authored papers 1

John R McLaughlin

University of Toronto Dalla Lana School of Public Health

Co-authored papers 1

Teri A Manolio

National Human Genome Research Institute

Co-authored papers 1