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Author Details

Anneke Lucassen
Clinical Ethics, University of Oxford
1992
182
46
PMIDPaper TitleJournal TitlePublished Year
37339848Discussion of off-target and tentative genomic findings may sometimes be necessary to allow evaluation of their clinical significance.J Med Ethics2024
38066171Glowing gels and pipettes aplenty: how do commercial stock image banks portray genetic tests?Eur J Hum Genet2024
38050060Ancestry, race and ethnicity: the role and relevance of language in clinical genetics practice.J Med Genet2024
35969375Access to Biobanks: Responsibilities Within a Research Ecosystem.Biopreserv Biobank2023
37535880Retrospective Cohort Study on the Limitations of Direct-to-Consumer Genetic Screening in Hereditary Breast and Ovarian Cancer.JCO Precis Oncol2023
35725300Beyond regulatory approaches to ethics: making space for ethical preparedness in healthcare research.J Med Ethics2023
35484929Ethical Considerations in Research with Genomic Data.New Bioeth2023
37417701Facilitating genetic testing after death: the ongoing duty of care to the deceased and their relatives.J R Soc Med2023
37344572Interventions to support patients with sharing genetic test results with at-risk relatives: a synthesis without meta-analysis (SWiM).Eur J Hum Genet2023
37178708Utility of polygenic risk scores in UK cancer screening: a modelling analysis.Lancet Oncol2023
37002328Immortal data: a qualitative exploration of patients' understandings of genomic data.Eur J Hum Genet2023
37268409Ethical preparedness and developments in genomic healthcare.J Med Ethics2023
36854461Realistic expectations are key to realising the benefits of polygenic scores.BMJ2023
36443602Genetic risk scores may compound rather than solve the issue of prostate cancer overdiagnosis.Br J Cancer2023
35172119Public Trust and Trustworthiness in Biobanking: The Need for More Reflexivity.Biopreserv Biobank2022
35657381Reclassification of clinically-detected sequence variants: Framework for genetic clinicians and clinical scientists by CanVIG-UK (Cancer Variant Interpretation Group UK).Genet Med2022
35868849A digital pathway for genetic testing in UK NHS patients with cancer: BRCA-DIRECT randomised study internal pilot.J Med Genet2022
35219975Re-imagining 'the patient': Linked lives and lessons from genomic medicine.Soc Sci Med2022
34878592In the family: access to, and communication of, familial information in clinical practice.Hum Genet2022
32929236What is the meaning of a 'genomic result' in the context of pregnancy?Eur J Hum Genet2021
35072136GA4GH: International policies and standards for data sharing across genomic research and healthcare.Cell Genom2021
34611493Patient data ownership: who owns your health?J Law Biosci2021
34649841Care of men with cancer-predisposing <i>BRCA</i> variants.BMJ2021
34112999Couple-based expanded carrier screening provided by general practitioners to couples in the Dutch general population: psychological outcomes and reproductive intentions.Genet Med2021
34050335Mitochondrial DNA variants in genomic data: diagnostic uplifts and predictive implications.Nat Rev Genet2021
33335072Using a biomarker acutely to identify babies at risk of serious adverse effects from antibiotics: where is the 'Terrible Moral and Medical Dilemma'?J Med Ethics2021
31570785GP-provided couple-based expanded preconception carrier screening in the Dutch general population: who accepts the test-offer and why?Eur J Hum Genet2020
31774570International perspectives on the implementation of reproductive carrier screening.Prenat Diagn2020
31662484Old consent and new developments: health professionals should ask and not presume.J Med Ethics2020
31919452Exploring broad consent in the context of the 100,000 Genomes Project: a mixed methods study.Eur J Hum Genet2020
33251050From Beyond the Grave: Use of Medical Information from the Deceased to Guide Care of Living Relatives.Curr Genet Med Rep2020
32886853Impact of different anticoagulation management strategies on outcomes in atrial fibrillation: Dutch and Belgian results from the GARFIELD-AF registry.J Thromb Haemost2020
32661073Using biomarkers in acute medicine to prevent hearing loss: should this require specific consent?J Med Ethics2020
32341467Cognitive and affective outcomes of genetic counselling in the Netherlands at group and individual level: a personalized approach seems necessary.Eur J Hum Genet2020
31527856Genome sequencing in healthcare: understanding the UK general public's views and implications for clinical practice.Eur J Hum Genet2020
30503854Fostering trust in healthcare: Participants' experiences, views, and concerns about the 100,000 genomes project.Eur J Med Genet2019
32055707Potential for diagnosis of infectious disease from the 100,000 Genomes Project Metagenomic Dataset: Recommendations for reporting results.Wellcome Open Res2019
31779608Reinterpretation, reclassification, and its downstream effects: challenges for clinical laboratory geneticists.BMC Med Genomics2019
31886409Genomic variant sharing: a position statement.Wellcome Open Res2019
32915220Direct-to-consumer genetic testing with third party interpretation: beware of spurious results.Emerg Top Life Sci2019
29904162When genomic medicine reveals misattributed genetic relationships-the debate about disclosure revisited.Genet Med2019
31235869European recommendations integrating genetic testing into multidisciplinary management of sudden cardiac death.Eur J Hum Genet2019
31603004Genomic testing in healthcare: a hybrid space where clinical practice and research need to co-exist.Expert Rev Mol Diagn2019
31281738Consent and Autonomy in the Genomics Era.Curr Genet Med Rep2019
31307358Unpacking the Concept of a Genomic Result.Am J Bioeth2019
31189727Is it acceptable to contact an anonymous egg donor to facilitate diagnostic genetic testing for the donor-conceived child?J Med Ethics2019
31619392Direct-to-consumer genetic testing.BMJ2019
30742054Feasibility of couple-based expanded carrier screening offered by general practitioners.Eur J Hum Genet2019
30837331Recent developments in genetic/genomic medicine.Clin Sci (Lond)2019
31123189Familial genetic risks: how can we better navigate patient confidentiality and appropriate risk disclosure to relatives?J Med Ethics2019
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Collaborators

University of Exeter
Co-authored papers 7
location Vrije Universiteit Amsterdam
Co-authored papers 6
Center for Biomedical Ethics and Law
Co-authored papers 6
Istanbul University
Co-authored papers 5
Belfast City Hospital
Co-authored papers 4
Institute of Cancer Research
Co-authored papers 4
UCL Institute of Child Health and Great Ormond Street NHS Foundation Trust
Co-authored papers 3
Co-authored papers 3
Center for Cancer Genetic Epidemiology, University of Cambridge
Co-authored papers 3
Stanford University School of Medicine
Co-authored papers 3
Queen Mary University of London, United Kingdom Society and Ethics Research
Co-authored papers 3
University of Southampton
Co-authored papers 3
The Institute of Cancer Research
Co-authored papers 3
Guy's and St Thomas' NHS Foundation Trust
Co-authored papers 3
the University of Hong Kong
Co-authored papers 2
University of Edinburgh
Co-authored papers 2
Victor Philip Dahdaleh Institute of Genomic Medicine at McGill University
Co-authored papers 2
Royal Devon University Healthcare NHS Foundation Trust
Co-authored papers 2
Co-authored papers 2
Co-authored papers 2
The Roslin Institute, The University of Edinburgh
Co-authored papers 2
Co-authored papers 2
Clinical Genetics, Addenbrooke's Hospital, Cambridge University Hospitals
Co-authored papers 2
Inserm, Toulouse Paul Sabatier University
Co-authored papers 2
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University of Exeter, Royal Devon and Exeter Hospital
Co-authored papers 2
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Kavli Centre for Ethics, University of Cambridge
Co-authored papers 2