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Author Details

Edward S Dove
University of Edinburgh
2011
82
18
PMIDPaper TitleJournal TitlePublished Year
37192473Achieving Procedural Parity in Managing Access to Genomic and Related Health Data: A Global Survey of Data Access Committee Members.Biopreserv Biobank2024
37323134Confidentiality, public interest, and the human right to science: when can confidential information be used for the benefit of the wider community?J Law Biosci2023
34936235The Ethical Implications of Big Data Research in Public Health: "Big Data Ethics by Design" in the UK-REACH Study.Ethics Hum Res2022
35772014Leveraging Algorithms to Improve Decision-Making Workflows for Genomic Data Access and Management.Biopreserv Biobank2022
35737496Automating Justice: An Ethical Responsibility of Computational Bioethics.Am J Bioeth2022
36527096"Data makes the story come to life:" understanding the ethical and legal implications of Big Data research involving ethnic minority healthcare workers in the United Kingdom-a qualitative study.BMC Med Ethics2022
33414545Toward better governance of human genomic data.Nat Genet2021
35592835Engaged genomic science produces better and fairer outcomes: an engagement framework for engaging and involving participants, patients and publics in genomics research and healthcare implementation.Wellcome Open Res2021
33931049Ethics review of big data research: What should stay and what should be reformed?BMC Med Ethics2021
35128509International federation of genomic medicine databases using GA4GH standards.Cell Genom2021
35072136GA4GH: International policies and standards for data sharing across genomic research and healthcare.Cell Genom2021
34567273Beyond categorisation: refining the relationship between subjects and objects in health research regulation.Law Innov Technol2021
34503867The Genetic Discrimination Observatory: confronting novel issues in genetic discrimination.Trends Genet2021
34270741Signalling Standards for Progress: Bridging the Divide Between a Valid Consent to Use Patient Data Under Data Protection Law and the Common Law Duty of Confidentiality.Med Law Rev2021
34244281Ethnicity and COVID-19 outcomes among healthcare workers in the UK: UK-REACH ethico-legal research, qualitative research on healthcare workers' experiences and stakeholder engagement protocol.BMJ Open2021
31473872Co-production and Managing Uncertainty in Health Research Regulation: A Delphi Study.Health Care Anal2020
33163110Fail to Prepare and you Prepare to Fail: the Human Rights Consequences of the UK Government's Inaction during the COVID-19 Pandemic.Asian Bioeth Rev2020
32203466Establishing the International Genetic Discrimination Observatory.Nat Genet2020
32342746To What Extent Does the EU General Data Protection Regulation (GDPR) Apply to Citizen Scientist-Led Health Research with Mobile Devices?J Law Med Ethics2020
31048483Consent insufficient for data release.Science2019
32259025Ethical and practical issues to consider in the governance of genomic and human research data and data sharing in South Africa: a meeting report.AAS Open Res2019
31298091Requiring a Single IRB for Cooperative Research in the Revised Common Rule: What Lessons Can Be Learned from the UK and Elsewhere?J Law Med Ethics2019
30776795Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?Ann Intern Med2019
31123189Familial genetic risks: how can we better navigate patient confidentiality and appropriate risk disclosure to relatives?J Med Ethics2019
29140477When can the Child Speak for Herself? The Limits of Parental Consent in Data Protection Law for Health Research.Med Law Rev2018
29695297Better governance, better access: practising responsible data sharing in the METADAC governance infrastructure.Hum Genomics2018
29514717Including all voices in international data-sharing governance.Hum Genomics2018
29509122Charting Regulatory Stewardship in Health Research: Making the Invisible Visible.Camb Q Healthc Ethics2018
28060429Reconfiguring Social Value in Health Research Through the Lens of Liminality.Bioethics2017
28989327Beyond individualism: Is there a place for relational autonomy in clinical practice and research?Clin Ethics2017
28836815Oversight of Genomic Data Sharing: What Roles for Ethics and Data Access Committees?Biopreserv Biobank2017
28913771Criminal Prohibition of Wrongful Reâ¿¿identification: Legal Solution or Minefield for Big Data?J Bioeth Inq2017
28661756The sIRB System: A Single Beacon of Progress in the Revised Common Rule?Am J Bioeth2017
26645377Personalized medicine beyond genomics: alternative futures in big data-proteomics, environtome and the social proteome.J Neural Transm (Vienna)2017
27106361Emerging ethical issues regarding digital health data. On the World Medical Association Draft Declaration on Ethical Considerations Regarding Health Databases and Biobanks.Croat Med J2016
26584410Biobanks in Oral Health: Promises and Implications of Post-Neoliberal Science and Innovation.OMICS2016
27990299Sharing health-related data: a privacy test?NPJ Genom Med2016
28058061Beyond regulatory compression: confronting the liminal spaces of health research regulation.Law Innov Technol2016
27115815A step forward for data protection and biomedical research.Lancet2016
27486077Streamlining ethical review of data intensive research.BMJ2016
27307116International Charter of principles for sharing bio-specimens and data.Eur J Hum Genet2016
27013718RESEARCH ETHICS. Ethics review for international data-intensive research.Science2016
25248396Genomic cloud computing: legal and ethical points to consider.Eur J Hum Genet2015
26270647Evaluation of Nine Consensus Indices in Delphi Foresight Research and Their Dependency on Delphi Survey Characteristics: A Simulation Study and Debate on Delphi Design and Interpretation.PLoS One2015
26345196What Role for Law, Human Rights, and Bioethics in an Age of Big Data, Consortia Science, and Consortia Ethics? The Importance of Trustworthiness.Laws2015
26711409Biobanks, Data Sharing, and the Drive for a Global Privacy Governance Framework.J Law Med Ethics2015
26161545An Appeal to the Global Health Community for a Tripartite Innovation: An "Essential Diagnostics List," "Health in All Policies," and "See-Through 21(st) Century Science and Ethics".OMICS2015
26066837A Delphi Technology Foresight Study: Mapping Social Construction of Scientific Evidence on Metagenomics Tests for Water Safety.PLoS One2015
26112289Data Safe Havens in health research and healthcare.Bioinformatics2015
25898060Ethical standards for research biobank donation.JAMA2015
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Collaborators

McGill University
Co-authored papers 26
Co-authored papers 23
McGill University.
Co-authored papers 13
Indian Institute of Technology Bombay
Co-authored papers 8
Co-authored papers 8
Osaka University
Co-authored papers 7
Ghent University
Co-authored papers 6
Co-authored papers 6
University of Oxford
Co-authored papers 5
Co-authored papers 5
McGill University
Co-authored papers 5
University of Tasmania
Co-authored papers 5
Dalla Lana School of Public Health, University of Toronto
Co-authored papers 4
University of Tasmania
Co-authored papers 4
Health Ethics and Policy Lab, ETH Zurich
Co-authored papers 4
Co-authored papers 4
Center for Medical Ethics and Health Policy, Baylor College of Medicine
Co-authored papers 4
Terry Fox Research Institute.
Co-authored papers 4
Institute for Biomedicine (Affiliated Institute of the University of Lubeck)
Co-authored papers 3
Montreal Neurological Institute, McGill University
Co-authored papers 3
University of California-San Francisco.
Co-authored papers 3
Center for Biomedical Ethics and Law
Co-authored papers 3
UNIVERSITY OF MONTREAL
Co-authored papers 3
Centre for Research Ethics & Bioethics, Uppsala University
Co-authored papers 2
Patient-Centered Outcomes Research Institute
Co-authored papers 2
Broad Institute
Co-authored papers 2
The Heart Institute, Cincinnati Children's Hospital Medical Center
Co-authored papers 2
Kavli Centre for Ethics, University of Cambridge
Co-authored papers 2
Children's Hospital of Eastern Ontario Research Institute
Co-authored papers 2
Cleveland Clinic
Co-authored papers 2