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Author Details

Adrian Thorogood
Terry Fox Research Institute.
2011
51
20
PMIDPaper TitleJournal TitlePublished Year
36630592Avoiding Liability and Other Legal Land Mines in the Evolving Genomics Landscape.Annu Rev Genomics Hum Genet2023
37879015Responsible Processing and Sharing of Genomic Data: Bringing Health Technologies Industries to the Table.Am J Bioeth2023
37230744Patient data for commercial companies? An ethical framework for sharing patients' data with for-profit companies for research.J Med Ethics2023
35201881Streamlining ethics review for international health research.Science2022
35125311Return of genomic results does not motivate intent to participate in research for all: Perspectives across 22 countries.Genet Med2022
33414545Toward better governance of human genomic data.Nat Genet2021
33868358Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility.Front Genet2021
35128509International federation of genomic medicine databases using GA4GH standards.Cell Genom2021
35072136GA4GH: International policies and standards for data sharing across genomic research and healthcare.Cell Genom2021
34820659The Data Use Ontology to streamline responsible access to human biomedical datasets.Cell Genom2021
34276804Corrigendum: Parental Access to Children's Raw Genomic Data in Canada: Legal Rights and Professional Responsibility.Front Genet2021
34034801Demonstrating trustworthiness when collecting and sharing genomic data: public views across 22 countries.Genome Med2021
32540846Bringing Code to Data: Do Not Forget Governance.J Med Internet Res2020
33644412Essential requirements for establishing and operating data trusts: practical guidance co-developed by representatives from fifteen canadian organizations and initiatives.Int J Popul Data Sci2020
31784701Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data.Eur J Hum Genet2020
32025008Genomics: data sharing needs an international code of conduct.Nature2020
32946764Global Public Perceptions of Genomic Data Sharing: What Shapes the Willingness to Donate DNA and Health Data?Am J Hum Genet2020
33005429Policy-aware data lakes: a flexible approach to achieve legal interoperability for global research collaborations.J Law Biosci2020
32784191COVID-19 Research: Navigating the European General Data Protection Regulation.J Med Internet Res2020
32435258Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe.Front Genet2020
30663603Openness, inclusion, and respect in dementia research.Lancet Neurol2019
29988078Accelerating evidence gathering and approval of precision medicine therapies: the FDA takes aim at rare mutations.Genet Med2019
30177852Correction to: Accelerating evidence gathering and approval of precision medicine therapies: the FDA takes aim at rare mutations.Genet Med2019
31531740Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia.Hum Genet2019
30971835Letter: Relearning the 3 R's? Reinterpretation, recontact, and return of genetic variants.Genet Med2019
31024616A Tale of Two Capacities: Including Children and Decisionally Vulnerable Adults in Biomedical Research.Front Genet2019
31048483Consent insufficient for data release.Science2019
30622328Return of individual genomic research results: are laws and policies keeping step?Eur J Hum Genet2019
30476628Attitudes of publics who are unwilling to donate DNA data for research.Eur J Med Genet2019
29454384APPLaUD: access for patients and participants to individual level uninterpreted genomic data.Hum Genomics2018
29856292'Your DNA, Your Say': global survey gathering attitudes toward genomics: design, delivery and methods.Per Med2018
30120572Correction to: Canada: will privacy rules continue to favour open science?Hum Genet2018
30014188Canada: will privacy rules continue to favour open science?Hum Genet2018
30062047Responsible sharing of biomedical data and biospecimens via the "Automatable Discovery and Access Matrix" (ADA-M).NPJ Genom Med2018
30293575Consent recommendations for research and international data sharing involving persons with dementia.Alzheimers Dement2018
30311376Genetic database software as medical devices.Hum Mutat2018
30586411BRCA Challenge: BRCA Exchange as a global resource for variants in BRCA1 and BRCA2.PLoS Genet2018
27977006Public variant databases: liability?Genet Med2017
29163494Reproducibility and Reuse of Adaptive Immune Receptor Repertoire Data.Front Immunol2017
28855147Consent Processes for Mobile App Mediated Research: Systematic Review.JMIR Mhealth Uhealth2017
28852560Substitute consent to data sharing: a way forward for international dementia research?J Law Biosci2017
27552966Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts.Eur J Hum Genet2016
27677416Registered access: a 'Triple-A' approach.Eur J Hum Genet2016
26711410International Guidelines for Privacy in Genomic Biobanking (or the Unexpected Virtue of Pluralism).J Law Med Ethics2015
24078715Reporting results from whole-genome and whole-exome sequencing in clinical practice: a proposal for Canada?J Med Genet2014
25792216Population biobanking and international collaboration.Pathobiology2014
25539799An implementation framework for the feedback of individual research results and incidental findings in research.BMC Med Ethics2014
23673253The Human Genome Organisation: towards next-generation ethics.Genome Med2013
23657386A P3G generic access agreement for population genomic studies.Nat Biotechnol2013
22404433Whole-genome sequencing and the physician.Clin Genet2012
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Collaborators

McGill University
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Co-authored papers 9
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Co-authored papers 9
Universite de Montreal.
Co-authored papers 8
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Co-authored papers 5
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Co-authored papers 5
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Co-authored papers 4
University of Edinburgh
Co-authored papers 4
University of Leicester
Co-authored papers 4
Institute for Biomedicine (Affiliated Institute of the University of Lubeck)
Co-authored papers 3
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Co-authored papers 3
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Co-authored papers 3
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Foundation Medicine Inc.
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CSC - IT Center for Science Ltd
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Patient-Centered Outcomes Research Institute
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Department of Medical Ethics and Law, Peking University Health Science Center
Co-authored papers 3
Cleveland Clinic
Co-authored papers 3