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Author Details

Barbara A Koenig
University of California-San Francisco.
1986
147
41
Vardit Ravitsky (CM4AI)
PMIDPaper TitleJournal TitlePublished Year
37330169Participant perceptions of changes in psychosocial domains following participation in an adaptive deep brain stimulation trial.Brain Stimul2023
35435795Researcher Views on Changes in Personality, Mood, and Behavior in Next-Generation Deep Brain Stimulation.AJOB Neurosci2023
37311883The role of polygenic risk scores in breast cancer risk perception and decision-making.J Community Genet2023
37236975Diagnostic yield of pediatric and prenatal exome sequencing in a diverse population.NPJ Genom Med2023
34057224Preference for secondary findings in prenatal and pediatric exome sequencing.Prenat Diagn2022
35444317The Human Pangenome Project: a global resource to map genomic diversity.Nature2022
35396980Perspectives and preferences regarding genomic secondary findings in underrepresented prenatal and pediatric populations: A mixed-methods approach.Genet Med2022
36968265The Challenge of Recruiting Diverse Populations into Health Research: An embedded social science perspective.New Genet Soc2022
35926784Post-trial access in implanted neural device research: Device maintenance, abandonment, and cost.Brain Stimul2022
36090688"If relatives inherited the gene, they should inherit the data." Bringing the family into the room where bioethics happens.New Genet Soc2022
35877161A qualitative study of unaffected ATM and CHEK2 carriers: How participants make meaning of 'moderate risk' genetic results in a population breast cancer screening trial.J Genet Couns2022
35089829How Ought Decisions That Weigh on Life and Death Be Justly Informed and Governed to Benefit More than the Privileged Few with Access to a Trusted Clinician?Am J Bioeth2022
34906477The difficulties of broad data sharing in genomic medicine: Empirical evidence from diverse participants in prenatal and pediatric clinical genomics research.Genet Med2022
32495676Conversations on Cancer Chemotherapy Cessation in Patients With Advanced Cancer: Qualitative Findings From a Multi-Institutional Study.Am J Hosp Palliat Care2021
33798442Opportunities and challenges for the computational interpretation of rare variation in clinically important genes.Am J Hum Genet2021
34888063Examining access to care in clinical genomic research and medicine: Experiences from the CSER Consortium.J Clin Transl Sci2021
34668890Ethical, Legal, and Social Implications of Fetal Gene Therapy.Clin Obstet Gynecol2021
34690676Patient, Caregiver, and Decliner Perspectives on Whether to Enroll in Adaptive Deep Brain Stimulation Research.Front Neurosci2021
34714858The limits of personalization in precision medicine: Polygenic risk scores and racial categorization in a precision breast cancer screening trial.PLoS One2021
33414545Toward better governance of human genomic data.Nat Genet2021
31298605Hospital and Health System Policies Concerning the California End of Life Option Act.J Palliat Med2020
33281581Researcher Perspectives on Ethical Considerations in Adaptive Deep Brain Stimulation Trials.Front Hum Neurosci2020
33424563Researcher Perspectives on Data Sharing in Deep Brain Stimulation.Front Hum Neurosci2020
32778825The role of exome sequencing in newborn screening for inborn errors of metabolism.Nat Med2020
30596322Should Researchers Offer Results to Family Members of Cancer Biobank Participants? A Mixed-Methods Study of Proband and Family Preferences.AJOB Empir Bioeth2019
31839987FDA oversight of NSIGHT genomic research: the need for an integrated systems approach to regulation.NPJ Genom Med2019
29901538Concurrent and Overlapping Surgery: Perspectives From Parents of Adolescents Undergoing Spinal Posterior Instrumented Fusion for Idiopathic Scoliosis.Spine (Phila Pa 1976)2019
29947292"Why did I get that part of you?" Understanding addiction genetics through family history.Public Underst Sci2019
31313633Consent for clinical genome sequencing: considerations from the Clinical Sequencing Exploratory Research Consortium.Per Med2019
31541538Participant Engagement in Translational Genomics Research: Respect for Persons-and Then Some.Ethics Hum Res2019
31101701A Multicenter Comparison of Complementary and Alternative Medicine (CAM) Discussions in Oncology Care: The Role of Time, Patient-Centeredness, and Practice Context.Oncologist2019
30894702Rethinking the "open future" argument against predictive genetic testing of children.Genet Med2019
30994075The Role of Participants in a Medical Information Commons.J Law Med Ethics2019
30994071Hopeful and Concerned: Public Input on Building a Trustworthy Medical Information Commons.J Law Med Ethics2019
30994069Characterizing the Biomedical Data-Sharing Landscape.J Law Med Ethics2019
31104772The Genomic Medicine Integrative Research Framework: A Conceptual Framework for Conducting Genomic Medicine Research.Am J Hum Genet2019
31048483Consent insufficient for data release.Science2019
30958507Hospital Responses to the End of Life Option Act: Implementation of Aid in Dying in California.JAMA Intern Med2019
28858330Navigating the research-clinical interface in genomic medicine: analysis from the CSER Consortium.Genet Med2018
30193136The Clinical Sequencing Evidence-Generating Research Consortium: Integrating Genomic Sequencing in Diverse and Medically Underserved Populations.Am J Hum Genet2018
30133723Sequencing Newborns: A Call for Nuanced Use of Genomic Technologies.Hastings Cent Rep2018
30133189Approaches to carrier testing and results disclosure in translational genomics research: The clinical sequencing exploratory research consortium experience.Mol Genet Genomic Med2018
30156425Contending Worldviews in the Clinical Encounter: An Empirical Study of Complementary and Alternative Medicine Deliberations in Contemporary Medical Oncology.J Altern Complement Med2018
30008546Pragmatic Tools for Sharing Genomic Research Results with the Relatives of Living and Deceased Research Participants.J Law Med Ethics2018
30311373The clinical imperative for inclusivity: Race, ethnicity, and ancestry (REA) in genomics.Hum Mutat2018
28103711The Experience of Hospital Death: Assessing the Quality of Care at an Academic Medical Center.Am J Hosp Palliat Care2018
29701109Attitudes Toward Return of Genetic Research Results to Relatives, Including After Death: Comparison of Cancer Probands, Blood Relatives, and Spouse/Partners.J Empir Res Hum Res Ethics2018
29523647Looking Back, Looking Forward: The Ethical Framing of Complementary and Alternative Medicine in Oncology Over the Last 20 Years.Oncologist2018
29380217Physician Perception of Pay Fairness and its Association with Work Satisfaction, Intent to Leave Practice, and Personal Health.J Gen Intern Med2018
29514717Including all voices in international data-sharing governance.Hum Genomics2018
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Collaborators

Baylor College of Medicine.
Co-authored papers 21
Law School and Medical School, University of Minnesota
Co-authored papers 16
University of Washington School of Medicine.
Co-authored papers 14
University of Washington School of Medicine
Co-authored papers 12
Harvard Medical School, Vanderbilt University, Yale University Yale Law School
Co-authored papers 11
Brigham and Women's Hospital, Broad Institute Ariadne Labs and Harvard Medical School
Co-authored papers 11
The Heart Institute, Cincinnati Children's Hospital Medical Center
Co-authored papers 9
Norton Children's Research Institute Affiliated with the University of Louisville
Co-authored papers 9
Mayo Clinic
Co-authored papers 8
Baylor College of Medicine.
Co-authored papers 7
Penn State College of Medicine
Co-authored papers 7
Icahn School of Medicine at Mount Sinai
Co-authored papers 7
University of North Carolina
Co-authored papers 7
Baylor College of Medicine.
Co-authored papers 7
University of Washington Medical Center
Co-authored papers 7
Mayo Clinic
Co-authored papers 6
National Human Genome Research Institute, National Institutes of Health
Co-authored papers 6
Cincinnati Children's Hospital Medical Center
Co-authored papers 6
Berman Institute of Bioethics, Johns Hopkins University
Co-authored papers 6
Medical Ethics and Health Policy, University of Pennsylvania
Co-authored papers 6
Case Western Reserve University
Co-authored papers 6
Boston Children's Hospital, Harvard Medical School
Co-authored papers 6
National Human Genome Research Institute, National Institutes of Health
Co-authored papers 6
University of California-San Francisco.
Co-authored papers 6
University of California San Francisco
Co-authored papers 6
University of British Columbia.
Co-authored papers 5
The Center for Law and the Biosciences, Stanford University
Co-authored papers 5
and Translational Research Center
Co-authored papers 5
Center for Biomedical Ethics, Stanford University School of Medicine
Co-authored papers 5
Mayo Clinic
Co-authored papers 5