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Author Details

Karen Uzark
University of Michigan ann arbor
1978
110
33
PMIDPaper TitleJournal TitlePublished Year
36380487Heart disease symptoms, cognitive functioning, health communication, treatment anxiety, and health-related quality of life in paediatric heart disease: a multiple mediator analysis.Cardiol Young2023
37642030Human Milk Feeding and Direct Breastfeeding Improve Outcomes for Infants With Single Ventricle Congenital Heart Disease: Propensity Score-Matched Analysis of the NPC-QIC Registry.J Am Heart Assoc2023
35730314Quality of life after Ross procedure in children.Cardiol Young2023
37145598Medical and End-of-Life Decision-Making Preferences in Adolescents and Young Adults with Advanced Heart Disease and Their Parents.JAMA Netw Open2023
37071633Patterns of Breastfeeding and Human Milk Feeding in Infants with Single-Ventricle Congenital Heart Disease: A Population Study of the National Pediatric Cardiology Quality Improvement Collaborative Registry.Breastfeed Med2023
37463545Pain and health-related quality of life in Duchenne muscular dystrophy: A multiple mediator analysis.Eur J Paediatr Neurol2023
37329981Predictors of Human Milk Feeding and Direct Breastfeeding for Infants with Single Ventricle Congenital Heart Disease: Machine Learning Analysis of the National Pediatric Cardiology Quality Improvement Collaborative Registry.J Pediatr2023
37162951Human milk feeding and direct breastfeeding improve outcomes for infants with single ventricle congenital heart disease: Propensity score matched analysis of the NPC-QIC registry.medRxiv2023
36648070Developmental Care for Hospitalized Infants With Complex Congenital Heart Disease: A Science Advisory From the American Heart Association.J Am Heart Assoc2023
36265572The Relationship of Family Factors to Psychosocial Outcomes in Children with Hypoplastic Left Heart Syndrome at 6 Years of Age.J Pediatr2023
34569457Evaluation of a "tummy time" intervention to improve motor skills in infants after cardiac surgery.Cardiol Young2022
35378609Primary Disease, Sex, and Racial Differences in Health-Related Quality of Life in Adolescents and Young Adults with Heart Failure.Pediatr Cardiol2022
35447274Design and methods for the training in exercise activities and motion for growth (TEAM 4 growth) trial: A randomized controlled trial.Int J Cardiol2022
35102660Self-reported quality of life in children with ventricular assist devices.Pediatr Transplant2022
34982760Developmental Care Practice and Documentation Variability in the Cardiac ICU.Pediatr Crit Care Med2022
35297271Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Association.J Am Heart Assoc2022
34668072Birth Location in Infants with Prenatally Diagnosed Hypoplastic Left Heart Syndrome.Pediatr Cardiol2022
33441486Six-Year Neurodevelopmental Outcomes for Children With Single-Ventricle Physiology.Pediatrics2021
33535863Family Function, Quality of Life, and Well-Being in Parents of Infants With Hypoplastic Left Heart Syndrome.J Fam Nurs2021
34082845Characterisation of neurodevelopmental and psychological outcomes in CHD: a research agenda and recommendations from the cardiac neurodevelopmental outcome collaborative.Cardiol Young2021
33377857Utilisation of early intervention services in infants with congenital heart disease following open-heart surgery.Cardiol Young2021
33423711Differences in perceptions of transition readiness between parents and teens with congenital heart disease: do parents and teens agree?Cardiol Young2021
32428726Longitudinal study of anthropometry in Fontan survivors: Pediatric Heart Network Fontan study.Am Heart J2020
31647374Medical and end-of-life decision making in adolescents' pre-heart transplant: A descriptive pilot study.Palliat Med2020
31885147Generalized and specific anxiety in adolescents following heart transplant.Pediatr Transplant2020
32777961Interstage Home Monitoring for Infants With Single Ventricle Heart Disease: Education and Management: A Scientific Statement From the American Heart Association.J Am Heart Assoc2020
32446482Transition Readiness in Teens and Young Adults with Congenital Heart Disease: Can We Make a Difference?J Pediatr2020
32417078Improved National Outcomes Achieved in a Cardiac Learning Health Collaborative Based on Early Performance Level.J Pediatr2020
32147219A Collaborative Learning Assessment of Developmental Care Practices for Infants in the Cardiac Intensive Care Unit.J Pediatr2020
30270167Health-Related Quality of Life in Children and Young Adults with Marfan Syndrome.J Pediatr2019
31182220Transition Readiness in Adolescents and Young Adults with Heart Disease: Can We Improve Quality of Life?J Pediatr2019
30806343Identifying best practices in interstage care: using a positive deviance approach within the National Pediatric Cardiology Quality Improvement Collaborative.Cardiol Young2019
28971577Development of quality metrics for ambulatory pediatric cardiology: Transposition of the great arteries after arterial switch operation.Congenit Heart Dis2018
29925455Examining variation in interstage mortality rates across the National Pediatric Cardiology Quality Improvement Collaborative: do lower-mortality centres have lower-risk patients?Cardiol Young2018
29357956Prevalence and risk factors associated with non-attendance in neurodevelopmental follow-up clinic among infants with CHD.Cardiol Young2018
29521004Delayed puberty and abnormal anthropometry and its associations with quality of life in young Fontan survivors: A multicenter cross-sectional study.Congenit Heart Dis2018
29533351Useful References in Pediatric Cardiac Intensive Care: The 2017 Update.Pediatr Crit Care Med2018
29316996A randomised trial of early palliative care for maternal stress in infants prenatally diagnosed with single-ventricle heart disease.Cardiol Young2018
28571639Longitudinal Outcomes of Patients With Single Ventricle After the Fontan Procedure.J Am Coll Cardiol2017
28365652Interstage Home Monitoring After Newborn First-Stage Palliation for Hypoplastic Left Heart Syndrome: Family Education Strategies.Crit Care Nurse2017
28223051Functional Status and Quality of Life in Survivors of Extracorporeal Membrane Oxygenation After the Norwood Operation.Ann Thorac Surg2017
28347538Infant Motor Skills After a Cardiac Operation: The Need for Developmental Monitoring and Care.Ann Thorac Surg2017
26685073Assessment of Quality of Life in Young Patients with Single Ventricle after the Fontan Operation.J Pediatr2016
28148316Design and initial results of a programme for routine standardised longitudinal follow-up after congenital heart surgery.Cardiol Young2016
27173036Challenges of Assessing Quality of Life in Congenital Heart Disease Globally.J Am Coll Cardiol2016
24934522Survival data and predictors of functional outcome an average of 15â¿¿years after the Fontan procedure: the pediatric heart network Fontan cohort.Congenit Heart Dis2015
26298627Assessment of Transition Readiness in Adolescents and Young Adults with Heart Disease.J Pediatr2015
25870346The role of home monitoring in interstage management of infants following the Norwood procedure.World J Pediatr Congenit Heart Surg2015
25663223Measuring quality of life in muscular dystrophy.Neurology2015
25554859Site of interstage outpatient care and growth after the Norwood operation.Cardiol Young2015
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Collaborators

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Co-authored papers 8
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Lurie Children's Hospital
Co-authored papers 7
Sara K Pasquali
C.S. Mott Children's Hospital, University of Michigan Medical School ann arbor
Co-authored papers 7
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Russell Gongwer
Boston Children's Hospital
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Jeffrey P Jacobs
University of Florida
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Victoria A Miller
Children's Hospital of Philadelphia
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E M Elixson
Massachusetts General Hospital
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David N Schidlow
Boston Children's Hospital
Co-authored papers 2
David C Bellinger
Boston Children's Hospital
Co-authored papers 2
Peter Shrader
Co-authored papers 2
Elyse Foster
University of California San Francisco (S.B., Western University
Co-authored papers 2
Jeffrey B Anderson
University of Cincinnati College of Medicine
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Heidi J Kalkwarf
Cincinnati Children's Hospital Medical Center Cincinnati
Co-authored papers 2
Victoria L Vetter
Perelman School of Medicine at the University of Pennsylvania
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Release 1.2