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Author Details

Danya F Vears
University of Melbourne
2004
104
23
PMIDPaper TitleJournal TitlePublished Year
37165103Australian public perspectives on genomic data governance: responsibility, regulation, and logistical considerations.Eur J Hum Genet2024
37864047Rapid genomic testing in critically ill patients with genetic conditions: position statement by the Human Genetics Society of Australasia.Eur J Hum Genet2024
37796364Ethics of artificial intelligence in prenatal and pediatric genomic medicine.J Community Genet2024
38007624Should secondary pharmacogenomic variants be actively screened and reported when diagnostic genome-wide sequencing is performed in a child?Genet Med2024
37530962The Parliamentary Inquiry into Mitochondrial Donation Law Reform (Maeve's Law) Bill 2021 in Australia: A Qualitative Analysis.J Bioeth Inq2024
36189958Navigating the uncertainties of next-generation sequencing in the genetics clinic.Sociol Health Illn2023
37592172Dealing with ambivalence in the practice of advanced genetic healthcare: towards an ethical choreography.Eur J Hum Genet2023
37877543Alleviating the confusion around content analysis: A comment in response to Wainstein, Elliott & Austin 2023.J Genet Couns2023
36949262A practical checklist for return of results from genomic research in the European context.Eur J Hum Genet2023
37454281What's in a name? Justifying terminology for genomic findings beyond the initial test indication: A scoping review.Genet Med2023
37415831Are We Ready for Whole Population Genomic Sequencing of Asymptomatic Newborns?Pharmgenomics Pers Med2023
37371202Intensive Care Clinicians' Perspectives on Ethical Challenges Raised by Rapid Genomic Testing in Critically Ill Infants.Children (Basel)2023
37238372Rapid Genomic Testing in Intensive Care: Health Professionals' Perspectives on Ethical Challenges.Children (Basel)2023
37336289Disclosure of genetic risk in the family: A survey of the Flemish general population.Eur J Med Genet2023
37270192Two-step offer and return of multiple types of additional genomic findings to families after ultrarapid trio genomic testing in the acute care setting: a study protocol.BMJ Open2023
37263770Storing paediatric genomic data for sequential interrogation across the lifespan.J Med Ethics2023
37226803Human Genetics Society of Australasia Position Statement: Genetic Carrier Testing for Recessive Conditions.Twin Res Hum Genet2023
36473622Australian public perspectives on genomic data storage and sharing: Benefits, concerns and access preferences.Eur J Med Genet2023
36680533Going home: Clinician perspectives on decision-making in paediatric home mechanical ventilation.J Paediatr Child Health2023
36595590Offering and Returning Secondary Findings in the Context of Exome Sequencing for Hearing Loss: Clinicians' Views and Experiences.AJOB Empir Bioeth2023
36245433Australian healthcare professionals' perspectives on the ethical and practical issues associated with genomic newborn screening.J Genet Couns2023
33987713Should we respect parents' views about which results to return from genomic sequencing?Hum Genet2022
35831422'Diagnostic shock': the impact of results from ultrarapid genomic sequencing of critically unwell children on aspects of family functioning.Eur J Hum Genet2022
35390218Moving from 'fully' to 'appropriately' informed consent in genomics: The PROMICE framework.Bioethics2022
35389343The patient with 41 reports: Analysis of laboratory exome sequencing reporting of a "virtual patient".Genet Med2022
36036426Genetic testing for psychiatric illness in children: ethical issues.Curr Opin Pediatr2022
35032068A framework for reporting secondary and incidental findings in prenatal sequencing: When and for whom?Prenat Diagn2022
34997232Informing relatives of their genetic risk: an examination of the Belgian legal context.Eur J Hum Genet2022
35268480Exploring Parent Support Needs during the Newborn Hearing Diagnosis Pathway.J Clin Med2022
33017265Old Challenges or New Issues? Genetic Health Professionals' Experiences Obtaining Informed Consent in Diagnostic Genomic Sequencing.AJOB Empir Bioeth2021
33822658Views on genomic research result delivery methods and informed consent: a review.Per Med2021
35072136GA4GH: International policies and standards for data sharing across genomic research and healthcare.Cell Genom2021
35011775Clinicians' Views and Experiences with Offering and Returning Results from Exome Sequencing to Parents of Infants with Hearing Loss.J Clin Med2021
34971444Consent for rapid genomic sequencing for critically ill children: legal and ethical issues.Monash Bioeth Rev2021
34748551Return of individual research results from genomic research: A systematic review of stakeholder perspectives.PLoS One2021
34234303Disclosure of genetic information to family members: a systematic review of normative documents.Genet Med2021
33122805Analysis of laboratory reporting practices using a quality assessment of a virtual patient.Genet Med2021
31472303Exploration of genetic health professional - laboratory specialist interactions in diagnostic genomic sequencing.Eur J Med Genet2020
31784701Members of the public in the USA, UK, Canada and Australia expressing genetic exceptionalism say they are more willing to donate genomic data.Eur J Hum Genet2020
31856387Genetic health professionals' experiences returning results from diagnostic genomic sequencing to patients.J Genet Couns2020
32005225Why genomics researchers are sometimes morally required to hunt for secondary findings.BMC Med Ethics2020
31943032On the Epistemic Status of Prenatal Ultrasound: Are Ultrasound Scans Photographic Pictures?J Med Philos2020
32635964Human Genetics Society of Australasia Position Statement: Predictive and Presymptomatic Genetic Testing in Adults and Children.Twin Res Hum Genet2020
32737393Genetics experience impacts attitudes towards germline gene editing: a survey of over 1500 members of the public.J Hum Genet2020
32200539Genetic health professionals' experiences with initiating reanalysis of genomic sequence data.Fam Cancer2020
32341470Communicating genetic information to family members: analysis of consent forms for diagnostic genomic sequencing.Eur J Hum Genet2020
30561534Kufs disease due to mutation of CLN6: clinical, pathological and molecular genetic features.Brain2019
31186543Searching for secondary findings: considering actionability and preserving the right not to know.Eur J Hum Genet2019
31531740Trust in genomic data sharing among members of the general public in the UK, USA, Canada and Australia.Hum Genet2019
30476628Attitudes of publics who are unwilling to donate DNA data for research.Eur J Med Genet2019
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Collaborators

Pascal Borry
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Co-authored papers 37
Karine Sénécal
Co-authored papers 15
Christopher Gyngell
University of Melbourne
Co-authored papers 11
Ingrid E Scheffer
Co-authored papers 10
Bartha Maria Knoppers
McGill University
Co-authored papers 10
Julian Savulescu
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Melanie Bahlo
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Baylor College of Medicine
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Dianne Nicol
University of Tasmania
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Stephanie O M Dyke
Montreal Neurological Institute, McGill University
Co-authored papers 2
Vasiliki Rahimzadeh
Center for Medical Ethics and Health Policy, Baylor College of Medicine
Co-authored papers 2
Michael S Hildebrand
Co-authored papers 2
Amber L Johns
Garvan Institute of Medical Research and The Kinghorn Cancer Centre
Co-authored papers 2
Erick R Scott
Icahn School of Medicine at Mount Sinai
Co-authored papers 2
Jason Bobe
Co-authored papers 2
Gabrielle Bertier
The Institute for Genomic Health, Icahn School of Medicine at Mount Sinai
Co-authored papers 2
Irenaeus F M de Coo
Unit Clinical Genomics, Maastricht University
Co-authored papers 2
John Christodoulou
University of Melbourne, The Royal Children's Hospital
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